If you’ve never had the pleasure of meeting Rosie, her mom Jo, or her big sister Bella, well then you are in for a real treat; this family is inspirational. Strong, charismatic, and engaging are just some of the words used to describe this unwavering family of three.
Despite the mountain of hardships they have confronted over the last nine years following Rosie’s diagnosis of brain cancer in 2007, they continue to march on with strength and valor. Rosie faces much more then three inoperable brain tumors, she also has a second life threatening condition called Hydrocephalus; plus Neurofibromatosis (NF1), and Bilateral Optic Nerve Atrophy, all life long chronic illnesses.
But, that’s not all, for seven years Rosie has also been dealing with Precocious Puberty and Pituitary Gigantism, a very rare and complex condition, but again, that’s not all, she also has issues with her heart, and has lived with extreme high blood pressure until 2015. Now add in low vision, poor balance, learning disabilities, Adjustment Disorder with Mixed Disturbance of Emotions and Conduct, ADHDC and panic attacks and it’s hard to imagine how this little girl has been able to deal with all of her medical demands for nine years. But there is still more; six different chemotherapy drugs, endless hospital visits, 9 brain surgeries, 14 additional surgeries, 100’s of tests, 1,000’s of needle pokes, IV’s and blood draws. It’s taken it’s toll not just on Rosie, but her sister and mother too.
Leaving their family home in November of 2013 was a difficult choice, but one that had to be made for a more stable, safer environment and better quality of life. Complicating matters even more Rosie’s Mom filed for divorce, she was without financial support or a job, BTB Foundation came in and saved the day from near homelessness. Now confronted with financial ruin, unsteady employment, multiple job losses, bankruptcy, surrendering of her car, major medical challenges herself, four moves within 28 months and their beloved dog with cancer, diabetes and blindness now too!
It’s more than anyone could take; but they manage to balance it all with an incredible faith and positive attitude all while reaching out to help others, raising funds and awareness for pediatric brain tumors, childhood cancer and NF.
The Colucci Girls host toy drives and run their organization, called Rosie’s Toy Box, together. Their efforts to preserver, their strong tenacity and shining spirits see them through time and time again. They try to rise above the difficulties, face their fears head on, and at times against all odds, astonish people with their commitment to serving others. If anyone is making lemonade out of lemons, it’s the Colucci Girls!
Rock Star Rosie, Super Sib Bella & Jo Mama are a passionate and kind bunch. Their mission is to provide family support by coming along side newly diagnosed families to show their understanding & care, to listen, provide encouragement and inform them about helpful foundations as they are ready. Their mission is to help to fund pediatric cancer research until there are better treatment options, more funds going into research and finally a cure.